The SARCOID NETWORKING ASSOCIATION was founded in 1992 to educate individuals, provide information and heighten public awareness about Sarcoidosis.
|
On April 23, 2009, Patrick J Kennedy introduced an important legislation called the "Prevention, Awareness, and Research of Autoimmune Disease Act of 2009". The Paraid Act will give 43 million dollars to research on autoimmune disease including sarcoidosis. We need you to write your congressmen and women to get this bill passed. No support group is large enough to do this on our own. We need the support of all groups to get this bill passed. It may be our best chance to really have in-depth research done on our diseases. For more information on the bill please go to www.aarda.org and the first article on their web site will link you to a more in-depth article on the bill. There is even a link to the address of your congressional member. Please help us get the Paraid bill passed. Thanks - |
NEW! Order videos from past conferences ... CLICK HERE
Sale items now available ... CLICK HERE
NEWS: Public Service Announcement & Research Studies: There are 18 trials currently recruiting Sarcoidosis patients ... learn more
Sarcoidosis
Registry:
www.snaregistry.org
Note from Sarcoidosis Registry: "We are pleased to announce that the
Sarcoidosis Registry is now online. The website address is
www.snaregistry.org. We
are already receiving exciting responses to the site and we look forward to
more.
We are proud to have Dr. Om Sharma, Dr. Ganesh Raghu, and Dr. Gopal Allada on
our Scientific Advisory Board. Their involvement adds knowledge and
understanding to this project.
Please contact Kristi Anderson for questions concerning the registry at
admin@snaregistry.org or 541-905-2092. We look forward to your questions and
responses to this endeavor. If we work together, we can make a difference."
Check out the latest events going on across the country ... details here
Disclaimer: Sarcoid Networking Association does not promote, endorse or encourage participation in any specific organization. Details are provided for information only and is subject to change without notice. Every effort is made to ensure that the details are as current as possible.
For detailed information about our 501(c)(3) status, go to www.guidestar.org.
Javascript counter courtesy of Robert Hashemian.